Friday, May 22, 2009

On Tuesday we went to follow up with the Developmental Pediatrician. I had filled out the Aspergers Questionairre (ASQ) months ago and at the routine follow up she had said we could discuss it further.

The visit was long, it was thorough. As always - I felt very supported and that they REALLY hear what I am saying there. They ask all the right questions.

Then she told me he definately qualifies for the diagnosis of Asperger's.

What???? I thought they would say this was just a screening and then make us jump through hoops and wait list after wait list to finally find out (oh wait, that's a different treatment centre) OR that she would tell me flat out there is no way he fits that diagnosis.

Nope. She showed me the papers - the charts and where he falls. He was so high it made me literally gasp. All these swirling thoughts and emotions were happening. Damn it, THIS is why I am so exhausted!!!!! She was very clear with me that this is not a case of a child being misdiagnosed up until now. This is an additional diagnosis. She didn't have to sell me on it - this is our "something more".

I knew it was coming, I've been assuming in my head he has AS and it's amazing how much easier it has been to let go of some things but to stay firm on others now that I had made peace with it. Or so I thought I had. Much like when we got the Neuropsych results back in 2005 - I felt like I had the wind knocked right out of me. As I teared up in the office I laughed and told the doctor "I honestly have no idea if these are tears of relief or sadness".

"Perhaps both" she said.

Yes, perhaps both.

Tuesday, May 05, 2009

Collective Bargaining

C has been branching out in his efforts to embrace self-advocacy. As a follow up to his recent plea which he felt was not heard since he has yet to be out for recess, he wrote the following today:

Dear Mrs. Teacher,

I am on strike for non fair recess practices and the only way to get me off strike is to let me go outside for recess.

The morning is the worst because I have to go to the games room and I hate the games room. I hate it because it is boring

I know everyone says the field is muddy and I have to wait but I don’t want to wait. Other kids don’t have to wait.

Please let me go outside



Now THAT is a letter! I helped him type it but the words are all his own. I am so proud.

As a backstory, there is a lot of talk of unions and strike in our house and community lately so where he got this terminology is pretty clear but I love how he figured out how to apply it to his situation.