Part of my commitment to myself and to my family is to do better taking care of myself. I feel weird just even typing that as I used to always roll my eyes when people would say that "But hon, you have to do things to take care of you!" and I would smile politely and say "I know, I know" and then walk away rolling my eyes saying "As if . . . ".
But if I learned anything last year - it's that I absolutely must find ways to take care of myself. So today I had an appointment and while I was there I shut my phone off. Yup, shut it off. Because, really, I NEEDED that therapy appointment and even if the phone rang, what would I do?? Walk out of an exceptionally expensive and important appointment to race accross town to do what exactly?? And truth be told I haven't had a call from the school (other than for legitimate illness) in a very long time.
I guess we were overdue.
At the end of my appointment I looked at my phone. 2 missed calls. From the school. Funny thing was though, I didn't panic. My stomach didn't bottom out. I thought to myself " I sure hope they called A". A further look at my phone told me that they had and he had messaged me to say that he knew I was at my appointment (have to LOVE that synchronized Outlook calendar on our Blackberry's) and he was heading to the school.
All this began occurring at 9:30. By the time I got home at 10:30 C was settled at home with a worker and A was on his way back to work. Everyone was calm. C had balked at doing class work (probably partly the work, partly the heat and partly the anticipation of a HUGE purchase that he made for himself that was due to be delivered today - more on that later). Anyhow, instead of blowing up in class he removed himself to the washroom. The call from the school was in case he blew completely. Instead he managed to pull himself together and get back to class for a few minutes before A even got home.
On my drive home though I admit I worried how A would react. Would he be frustrated or even angry at the wasted drive home in the middle of his work day? Instead I heard how he discussed it calmly with our boy and made sure to congratulate him on his ability to work it through and go back to class.
He's amazing that man of mine.
Showing posts with label school. Show all posts
Showing posts with label school. Show all posts
Wednesday, June 08, 2011
Saturday, March 19, 2011
When You Wish Looks Could Kill (or at least do serious harm)
I was reading Kari's post this morning and it made me remember an incident years ago with C. I thought I had blogged it because I remembered typing it out. Turns out it was years before I started blogging but I thought I would post it today. This was back when the only official diagnosis we had was ADHD and we were about to get the Tourette's diagnosis.
September 24, 2004
I am a mother now. After much soul searching, treatments, agony, despair and hope I became a mother. And as my son learns and grows, so do I. Nothing could have prepared me for motherhood, nothing could have prepared me for this wonderful energy force to take me on the most amazing ride of my life. It’s exhilarating, it’s exhausting, and it’s beyond mere words.
Yesterday a boy at C’s school called him crazy. Worse than just hearing about it I witnessed it. As C comes around the corner to join the boys at the monkey bars, the brother of one of his classmate’s yells, “watch out guys, here comes the crazy kid”. Of course he didn’t notice me about 30 feet away but his buddy next to him did. As I approached I yelled “Hey, why would you say that to him?” In a way I have to give this kid credit (or is it lack of upbringing?) as he stood his ground and looked at me and said, “then why does he do those things?”.
How I wish I had the perfect pat answer all ready for this kid. I waited a moment (giving the kid the evil eye) and said, “because he can’t help it, his brain and his body don’t always work together. But that doesn’t make him crazy; it just means he sometimes needs extra help. Why don’t you try to help him out instead of picking on him?” In some after school special that kid would have apologized and become my son’s staunchest supporter. Instead, he shrugged and walked away. I bumped into his mother a few moments later and shared the story, and she did much the same. I guess I know now where her kid gets it.
Wednesday, February 16, 2011
Reminder to Myself
Things for C are going well (and yes, I know I just tempted fate by blogging that but oh well). He has his ups and downs and every day is a challenge - and yet, he's managing everything and compared to how things have been in the past things are good.For me I gauge that he's having good days partially by if I think he is happy and partially by if I am receiving phone calls from school and the treatment centre about concerns or not. I have not been getting any calls lately and overall C seems happy.
What does that mean for me though? Does this mean that because I can tell people he is doing well that the same goes for me - that we are so entwined that his "good" day dictates that I have a good day? Cause let me tell you - his "good days" that I am SOOOO thankful for come at a HUGE cost to me. The patience and calm that must absolutely ooze out of every pour of my body in order to help him stay regulated. The work calls and tasks (yes I'm trying to do some contract work that allows me to mostly work from home) that I have to just drop, sometimes literally mid-call, to tend to his increasingly overwhelmed system.
We increased C's time at his community school this week. I had held everyone off, including C, as long as I could. I knew in my gut he was as ready as he was going to be - and yet, I've been down this road before. Even good and happy and successful experiences can wreak havoc on C. I knew that the more time he spends at school, the more he will use up all of his reserves trying to act right and control himself. Then he will come home and be dysregulated. Funny though - even though you KNOW it's going to happen there is no way to prepare fully.
So I'm doing my best to keep calm and to stay focused on what is important. It's important to be there for my son and to help him to regulate. And I do see that it is taking less from me to help him do that. I am mindful that he has made huge progress.
What I don't need are so called "professionals" who know absolutely nothing about attachment or therapeutic parenting or really anything about how to "handle" kids with anything other than threats and punishment - I don't need those people making insinuations and assumptions about my parenting. Even more so I need to remind myself that I don't care what they think - I know I am doing right by my son. I will pray that one day they will understand what we are trying to do. I will pray that they will reign in their harmful practices. I will pray that when they do one day realize how different their approach could have been that they will be able to forgive themselves because just as sure as I am that they are doing incredible harm I also know that their hearts are in the right place and they really believe they are doing good.
What does that mean for me though? Does this mean that because I can tell people he is doing well that the same goes for me - that we are so entwined that his "good" day dictates that I have a good day? Cause let me tell you - his "good days" that I am SOOOO thankful for come at a HUGE cost to me. The patience and calm that must absolutely ooze out of every pour of my body in order to help him stay regulated. The work calls and tasks (yes I'm trying to do some contract work that allows me to mostly work from home) that I have to just drop, sometimes literally mid-call, to tend to his increasingly overwhelmed system.
We increased C's time at his community school this week. I had held everyone off, including C, as long as I could. I knew in my gut he was as ready as he was going to be - and yet, I've been down this road before. Even good and happy and successful experiences can wreak havoc on C. I knew that the more time he spends at school, the more he will use up all of his reserves trying to act right and control himself. Then he will come home and be dysregulated. Funny though - even though you KNOW it's going to happen there is no way to prepare fully.
So I'm doing my best to keep calm and to stay focused on what is important. It's important to be there for my son and to help him to regulate. And I do see that it is taking less from me to help him do that. I am mindful that he has made huge progress.
What I don't need are so called "professionals" who know absolutely nothing about attachment or therapeutic parenting or really anything about how to "handle" kids with anything other than threats and punishment - I don't need those people making insinuations and assumptions about my parenting. Even more so I need to remind myself that I don't care what they think - I know I am doing right by my son. I will pray that one day they will understand what we are trying to do. I will pray that they will reign in their harmful practices. I will pray that when they do one day realize how different their approach could have been that they will be able to forgive themselves because just as sure as I am that they are doing incredible harm I also know that their hearts are in the right place and they really believe they are doing good.
Tuesday, November 27, 2007
Give him his dignity!!!!
I admit it people, I lost it. I saw red when dealing with the school yesterday and I told the principal to call C's class and have them get him ready - I walked out the front door with an estatic 9 year old boy with a forced smile on my face. I really wasn't sure what I was doing, I just knew that I could not leave my son in a place that would do such a thing to him. I'm posting the letter I wrote right afterwards to the school so you can better understand (names and identifying info have been removed). For any American friends reading this, please bare in mind that our processes (read: lack of laws) make education very different than it is in your neck of the woods.
Dear PRINCIPAL
I am writing to follow up on the conversation that occurred this morning in your office with regard to my son C and the washroom. On November 13, 2007 I received a voicemail message from Ms. Blank where she simply left her name and asked me to call her. She and I were able to speak on the phone the following day where she abruptly informed me that "C will be using the Senior Kindergarten washroom from now on". I was shocked and explained that C has long standing washroom issues and that his using the private washroom was agreed upon by his team at school when I brought him in at the end of August. I explained that perhaps Ms. BLANK wasn't aware of all this and her response was that the "handicap" (her word, not mine) bathroom is "not for kids like C" and that is why he is no longer allowed to use that washroom. C had shared with me the evening before that he had "peed all over" the toilet and received a detention for it. I asked Ms. C if this was the reason for the change and she indicated this was part of it but that there were ongoing issues (which she didn't expand on or explain) and that his using the SK bathroom would allow the EA to "have more control". I told her, very clearly, that we were not in favour of this plan and that we did not want him using the SK bathroom.
Last week I mentioned to you PRINCIPAL that I wanted to set up a meeting with you to discuss Ms.BLANK's phone call and the bathroom issue. At that time I indicated that I was not in a rush for the meeting as I had no reason to believe that, contrary to our wishes, C was using the SK bathroom. However, I did want to follow up with you with regard to my concerns for the tone of the conversation and the inappropriateness of someone not of C's team calling me and changing plans that had been carefully devised with his unique needs in mind. I intended in that meeting to discuss these issues to in order to avoid future incidents. Following my conversation with you in the hall, however, C made a comment at home about having to use the "baby bathroom" at school and this led me to discover that he had, in fact, been made to use the SK bathroom. I attempted to call the school to speak with Mrs. M (who is his LSST and seemed the appropriate person to discuss this with) on Thursday and Friday of last week, however, she was away. This is why the discussion occurred today.
Forcing our nine year old son to use a washroom that is designed for four and five year olds and housed within the Kindergarten room is inappropriate and degrading. When I explained to you this morning that C views this move to the Senior Kindergarten bathroom as a
punishment you agreed and said "well, yes it is - he peed all over ______ (CHILD's NAME REMOVED OUT OF RESPECT FOR HER PRIVACY) velcro straps that are used for her toileting". I admit I was astonished that you would agree with the wording of PUNISHMENT and that you could not understand why I felt so strongly that C not be forced to use a toilet that is too small and is inappropriate. Punishing a child for actions directly related to his disability is in direct violation of his human rights. C himself has shared with us that he does not like to go to that bathroom as it is "for babies" and with his OCD issues around toileting this is having a detrimental effect on him. Forcing him to use the SK bathroom is a violation of his rights and an assault on his dignity and we cannot stand by and allow his self esteem to be so blatantly eroded. I removed him from school today as we cannot and will not stand by while he is actively punished for his disability.
As you are aware, we have been asking for a written toileting plan for several years now as concerns with C in the bathroom are long standing. All I wanted today was assurance for you that C would not be using the SK bathroom. I understand that a longer term plan will take some time and I am confident that you will include us, his parents, as part of that planning. This is why C and I came to the school on August 30, 2007 to try to problem solve what might be an appropriate bathroom for him to use that accommodates his unique toileting needs stemming from his TS, OCD, ADHD and learning disabilities.
It does seem that there has been break down in communication between Mrs. BLANK and members of C's current school team. I understand that my insisting that C NOT use the SK bathrooms, effective immediately, was a surprise to you. This is unfortunate as I believe I was very clear with Mrs. BLANK during my conversation with her on November 14, 2007 that we were NOT in agreement with this plan and did not want this to occur.
We are confident that this matter will be addressed in a timely fashion so that C may return to school a fully integrated and accommodated 4th grader with his dignity and self worth intact.
Dear PRINCIPAL
I am writing to follow up on the conversation that occurred this morning in your office with regard to my son C and the washroom. On November 13, 2007 I received a voicemail message from Ms. Blank where she simply left her name and asked me to call her. She and I were able to speak on the phone the following day where she abruptly informed me that "C will be using the Senior Kindergarten washroom from now on". I was shocked and explained that C has long standing washroom issues and that his using the private washroom was agreed upon by his team at school when I brought him in at the end of August. I explained that perhaps Ms. BLANK wasn't aware of all this and her response was that the "handicap" (her word, not mine) bathroom is "not for kids like C" and that is why he is no longer allowed to use that washroom. C had shared with me the evening before that he had "peed all over" the toilet and received a detention for it. I asked Ms. C if this was the reason for the change and she indicated this was part of it but that there were ongoing issues (which she didn't expand on or explain) and that his using the SK bathroom would allow the EA to "have more control". I told her, very clearly, that we were not in favour of this plan and that we did not want him using the SK bathroom.
Last week I mentioned to you PRINCIPAL that I wanted to set up a meeting with you to discuss Ms.BLANK's phone call and the bathroom issue. At that time I indicated that I was not in a rush for the meeting as I had no reason to believe that, contrary to our wishes, C was using the SK bathroom. However, I did want to follow up with you with regard to my concerns for the tone of the conversation and the inappropriateness of someone not of C's team calling me and changing plans that had been carefully devised with his unique needs in mind. I intended in that meeting to discuss these issues to in order to avoid future incidents. Following my conversation with you in the hall, however, C made a comment at home about having to use the "baby bathroom" at school and this led me to discover that he had, in fact, been made to use the SK bathroom. I attempted to call the school to speak with Mrs. M (who is his LSST and seemed the appropriate person to discuss this with) on Thursday and Friday of last week, however, she was away. This is why the discussion occurred today.
Forcing our nine year old son to use a washroom that is designed for four and five year olds and housed within the Kindergarten room is inappropriate and degrading. When I explained to you this morning that C views this move to the Senior Kindergarten bathroom as a
punishment you agreed and said "well, yes it is - he peed all over ______ (CHILD's NAME REMOVED OUT OF RESPECT FOR HER PRIVACY) velcro straps that are used for her toileting". I admit I was astonished that you would agree with the wording of PUNISHMENT and that you could not understand why I felt so strongly that C not be forced to use a toilet that is too small and is inappropriate. Punishing a child for actions directly related to his disability is in direct violation of his human rights. C himself has shared with us that he does not like to go to that bathroom as it is "for babies" and with his OCD issues around toileting this is having a detrimental effect on him. Forcing him to use the SK bathroom is a violation of his rights and an assault on his dignity and we cannot stand by and allow his self esteem to be so blatantly eroded. I removed him from school today as we cannot and will not stand by while he is actively punished for his disability.
As you are aware, we have been asking for a written toileting plan for several years now as concerns with C in the bathroom are long standing. All I wanted today was assurance for you that C would not be using the SK bathroom. I understand that a longer term plan will take some time and I am confident that you will include us, his parents, as part of that planning. This is why C and I came to the school on August 30, 2007 to try to problem solve what might be an appropriate bathroom for him to use that accommodates his unique toileting needs stemming from his TS, OCD, ADHD and learning disabilities.
It does seem that there has been break down in communication between Mrs. BLANK and members of C's current school team. I understand that my insisting that C NOT use the SK bathrooms, effective immediately, was a surprise to you. This is unfortunate as I believe I was very clear with Mrs. BLANK during my conversation with her on November 14, 2007 that we were NOT in agreement with this plan and did not want this to occur.
We are confident that this matter will be addressed in a timely fashion so that C may return to school a fully integrated and accommodated 4th grader with his dignity and self worth intact.
Sunday, November 25, 2007
The Alphabet Soup of Diagnosis
I think we have reached an impasse. I am really struggling with what to do. On the one hand I refuse to be beholden to diagnosis, I don't want my child prejudged or held down by man made labels. I try to tell myself that the letters that exist after his name are already enough for a 9 year old, do I really want to add more? For what purpose? As it is we had a school meeting a few weeks ago and the Special Education coordinator was new and I spent five minutes just listing the various diagnosis and "issues" - all the while trying to start with my sons strengths and being respectful of all his wonderful qualities rather than making him sound like a walking DSM-IV
So here is the situation - when C had neuropsychological testing a couple years ago it showed that he had "multiple learning disabilities". Actually, it really said "what best could be described as multiple learning disabilities" or something to that effect. I won't rehash the whole experience but lets just say we have never really understood what that meant. We were not given specifics about which specific learning disabilities he has. Fast forward to Grade 4 and I am being told that he is reading at grade level and his Math is just slightly behind (not sure that I agree with the math but he is making steady progress). His writing is behind but considering his "below first percentile" in the Occupational Therapy testing and that he just got his computer this past September, he's doing well. I knew at the time the testing was completed that no one had a crystal ball and he was so young that we had to interpret the results with caution (even if the administering Psychologist didn't).
Everyone agrees that C has made huge academic progress and we are all delighted. Why then can I not just sit back a relax. Other parents grappling with the same issues will understand. I cannot sit back because there is soooooo much more to be done. C is still not allowed to eat lunch with his class. He "sometimes" gets recess and truthfully, he has no real friends. More and more he is struggling to understand social interactions. He just doesn't interact the way that "typical" kids do. He talks to people assuming that they already know what he is talking about, he dominates conversations or juss walks away when people are talking to him. He is enamored by a classmate and has made her feel extremely uncomfortable by trying to give her presents, staring at her and yelling "I love you" across the playground. He comes across as selfish and self centered and I know this is not true. The relationship between he and my husband is more strained than ever. Today he (C, not my husband) had a meltdown in the middle of Walmart, complete with punching me in the back and rolling around on the floor. Who is this child and why is it that this doesn't seem like just LD's or the OCD, or the ADHD or blah blah blah. Something else is going on and I am really thinking that we need to know.
So here is the situation - when C had neuropsychological testing a couple years ago it showed that he had "multiple learning disabilities". Actually, it really said "what best could be described as multiple learning disabilities" or something to that effect. I won't rehash the whole experience but lets just say we have never really understood what that meant. We were not given specifics about which specific learning disabilities he has. Fast forward to Grade 4 and I am being told that he is reading at grade level and his Math is just slightly behind (not sure that I agree with the math but he is making steady progress). His writing is behind but considering his "below first percentile" in the Occupational Therapy testing and that he just got his computer this past September, he's doing well. I knew at the time the testing was completed that no one had a crystal ball and he was so young that we had to interpret the results with caution (even if the administering Psychologist didn't).
Everyone agrees that C has made huge academic progress and we are all delighted. Why then can I not just sit back a relax. Other parents grappling with the same issues will understand. I cannot sit back because there is soooooo much more to be done. C is still not allowed to eat lunch with his class. He "sometimes" gets recess and truthfully, he has no real friends. More and more he is struggling to understand social interactions. He just doesn't interact the way that "typical" kids do. He talks to people assuming that they already know what he is talking about, he dominates conversations or juss walks away when people are talking to him. He is enamored by a classmate and has made her feel extremely uncomfortable by trying to give her presents, staring at her and yelling "I love you" across the playground. He comes across as selfish and self centered and I know this is not true. The relationship between he and my husband is more strained than ever. Today he (C, not my husband) had a meltdown in the middle of Walmart, complete with punching me in the back and rolling around on the floor. Who is this child and why is it that this doesn't seem like just LD's or the OCD, or the ADHD or blah blah blah. Something else is going on and I am really thinking that we need to know.
Subscribe to:
Posts (Atom)